Background Information
What Everyone Should Know
Important Terms
Invisible Disability: A disability is a aspect of a person that poses a challenge in their life. When it is invisible, it goes unnoticed based on physical appearance of the person. Invisible disabilities can be neurological, physical, or mental (Invisible Disability Association, 2020).
Visibility: Bringing invisible disabilities to light and making them visible is an important aspect of inclusion. Because invisible disabilities are not readily seen they must be made known by other means. By vocalizing about them and spreading knowledge about them they will become "visible" in some sense of the word.
Ableism: Ableism is a form of discrimination that marginalizes people who have a disability. In the context of invisible disabilities, ableism presents its self as not treating invisible disabilities as real disabilities. Some statements about people may boil down to "but you don't look disabled;" this statement ignores the person's disability because it is not readily detectable. Ableism poses a challenge to people with hidden disabilities because it prevents their issues from being discussed and treated as legitimate.
Neurological: Disabilities that occur from nervous system are considered neurological. Because they happen in the nerves or brain they are not seen to the naked eye. Epilepsy is an example of a neurological invisible disability.
Physical: Physical invisible disabilities exist in multiple forms. Physical invisible disabilities, however, cannot be seen unlike other physical disabilities. An example would be joint issues.
Mental: Depression and anxiety are examples of mental disabilities. They are common and can effect the day to day life of the people who have them.
Doubt: It may be tempting to doubt a person when they say they have a disability and believe they are just using it as an excuse. This is not something a person who has a disability that is readily seen (such as a wheelchair) goes through. If a person says they have a disability then it is imperative to believe them.
Microaggression: A microaggression is a small comments or non verbal cues that communicate to others a negative attitude towards a group of people. These reflect ableism and show people of marginalized groups that they are not equal.
Disclosure: It is up to the individual with an invisible disability to disclose what they have with others. They are not obligated to share the information because it can be a private matter.
Stigmatization: When a thing is stigmatized it becomes associated with negativity. This effects people with invisible disabilities because it can make them seem lesser if they disclose to others they have one. An example of this would be the stigmatization of depression; often people will call depressed people lazy and brush off the condition as merely being "sad" rather than it being a true disability.
How Should Inclusion Begin?
When a person discloses they have a disability it is important to believe them and take it seriously rather than doubting them and saying something along the lines of "you do not look disabled." Disbelief in a person can reflect ableism. This is a microaggression that causes distress in people with invisible disabilities and puts a burden of teaching others on themselves (Kattari & Olzman 2018). These microaggressions could be on purpose or reflect an unconscious bias but the intent does not matter. The consequence does.
Data on Invisible Disabilities
Below are some charts that show a glimpse of having a disability in the workplace. Regarding invisible disabilities, the data is often mixed in with other disabilities that may be visible.
Discrimination Faced
Below is a graph that are the answers to a survey. It was conducted by RespectAbility (a non profit organization aimed at creating awareness for disabled people and destigmatization) in 2018. For this graph the question was "Many organizations do not fully include people with disabilities. What do you think is the top reason why the inclusion of people with disabilities has not happened yet in so many organizations?" and the responses varied some (respectability, 2018). However, there is a large portion of people who believe there is unconscious bias at play. The second highest answer is slightly puzzling. It pushes the burden of inclusion fully on the people with disabilities to make the initiative to become included. This totally ignores the stigma many people have against disabilities and why many people do not speak up about them.
Diversity, Inclusion and Equity?
The next graph is from the same survey above by RespectAbility. The question to this answer was "Has the leadership of your organization made a specific commitment to diversity, equity, and inclusion that has been made public to management, staff, stakeholders, and the public? If yes, check all the diversity areas you specifically named?." Diversity, equity, and inclusion (DEI) are all important concepts moving forward in the future years of organizations. However people with disabilities still face challenges in a DEI space. Below shows data collected by RespectAbility that indicates that while DEI does at least notice disabled people, they are not in still have a long way to go before they become a priority.
United States Census Data
Below is United States Census data from 2018 that shows the proportions of people with a disability who work and those who do not. In total, 81% of people without a disability had a job. People with a disability only had a 41.2% employment rate. This is a staggering difference. Hearing, vision, and cognitive disabilities make up a large chunk of disabled people. All of these disabilities may not be readily noticeable by onlookers which makes them invisible disabilities.
References
Invisible Disabilities Association. (2020). Retrieved from Invisible Disabilities Association: https://invisibledisabilities.org/what-is-an-invisible-disability/
Kattari, S. K., Olzman, M., & Hanna, M. D. (2018). “You Look Fine!”: Ableist Experiences by People With Invisible Disabilities. Affilia, 33(4), 477–492. https://doi.org/10.1177/0886109918778073
respectability. (2018). Retrieved from respectability: https://www.respectability.org/inclusive-philanthropy/survey-results-current-practices/
United States Census. (2018, June 6). Retrieved from Census: https://www.census.gov/library/visualizations/2018/comm/disability.html